mountains and valleys

The time between updates have been pretty eventful, so sorry for the lack of updates. Overall Jax is still doing well, but it seems like a 2 step forward and 1 step back process. He is still on antibiotics but his infection seems to be gone based on his lab work. He is active, he has no oxygen support, he has no IV's other than his pick line, his color is great, he has not had a Brady in a few days and all of his stats look great.

By Monday the infection became under control enough to start feeding and we were excited to get back on the right track. He had feeds for about 12 hours and unfortunately they did not go so well. He had a large amount of residual that built up and they had to stop the feeding because it was not flowing through properly.

Today we had a good opportunity to talk to the nurses and they are not sure what the doctor will advise, but they may just give him a little break and try again later or start doing some upper GI tests. The GI tests will show if there are any blockages in his belly from the surgery that may need to be remove.

Its crazy how many mountains and valleys you go through in this process....One day you feel like your doing great then the next you feel like things are going in the wrong direction. I just thank God that there has been so much to be grateful so far and remind myself that there is nothing I can do but be there and Jax is in God's hands.

Please continue to pray for Jax. Pray that God will touch his belly and give him strength as he learns to digest and process his food. Pray for no blockages or bottlenecks in his belly. Pray for protection from infection and illness. Thank you all for your continued support and prayers!!!